Camille Estelle Osborn, of Woodville, was born a fighter. The daughter of Kyle and Casey Osborn and sister to her older brother Kaden, 3, Camille has had a long and tough first 19 months of life.
Born Feb. 19, 2012, the little one has already had her kidneys removed because of a disease known as Autosomal Recessive Polycystic Kidney Disease. At birth, Camille’s kidneys were the size of an adult’s kidneys and covered in cysts.
Since she was five days old, Camille has spent 12 hours a day on dialysis. She has multiple complications related to end stage kidney failure. Parathyroid dysfunction and bone fractures have caused severe deformities to her lower extremities.
Recently, Camille was diagnosed with Congenital Hepatic Fibrosis and Caroli’s Disease, which will progress into liver infections and failure.
Physicians at Children’s Hospital of Wisconsin have recommended a life-saving kidney and liver transplant.
An estimated $50,000 is being raised by volunteers for the Children’s Organ Transplant Association (COTA) in honor of Camille to assist with the cost of transplant-related expenses.
“The goal is to raise $50,000 in honor of Camille for COTA,” Casey said. “The money is placed into a trust for Camille. We are then able to request funds when it comes to her transplant medical expenses.”
COTA is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. The organization’s priority is to assure that no child or young adult is denied a transplant or excluded from a transplant waiting list due to lack of funds. One hundred percent of all funds raised are used for patients’ transplant-related expenses.
Casey, a full-time case manager at Mercy St. Anne Hospital in Toledo and Kyle, a cabinetmaker at Swisher Custom Cabinetry in Genoa, both have insurance. The cost of the transplant as well as a lifetime of medications for Camille make it necessary for the family to raise funds to cover those expenses.
“She (Camille) will be on anti-rejection medications for the rest of her life,” Casey said. “COTA is a wonderful organization. It has helped take some of the burden off of our shoulders. Even with both of us working and having some insurance, the cost is incredible.”
Camille currently receives dialysis 12 hours per day. According to Casey, the dialysis treatments are done at bedtime in order to allow the energetic toddler to live as normal a life as possible.
“She got pretty ill with an infection last month because dialysis leaves her open to infection,” Casey said. “She will be on antibiotics for a few more weeks. She has been put on hold for a transplant. When the infection is gone, she will be ‘active’ on the list again.”
The family is also hoping that living donors for both a kidney and liver transplant are found soon. A friend of the family was being tested to be a possible kidney donor. Unfortunately, she cannot be a donor, Casey said.
“We have had three people tested to be donors and so far it has not worked out,” Casey said. “We are looking for an adult kidney and liver with O blood type. The RH (Rhesus factor) does not matter.
Using a living donor has many benefits. One of those benefits is that the organ never has to be placed on a bypass machine. It is taken directly from the donor and put into the recipient.”
Anyone considering becoming an organ donor can contact Children's Hospital Wisconsin and Froedtrt Hospital. The contact for Living Liver donation is Barb at 414-955-6952. The Living Kidney donation contact is 414-805-0310.
Volunteers are needed to assist with fundraising activities that will help with transplant-related expenses. Individuals and groups interested in more information can contact Julie Schumaker, community coordinator, at 419-707-2688 or at firstname.lastname@example.org.
Donations may be mailed to the Children’s Organ Transplant Association, 2501 West COTA Drive, Bloomington, Indiana, 47403. Checks or money orders should be made payable to COTA, with “In Honor of Camille O” written on the memo line of the check.
For more information on Camille or to make a secure credit card donation, visit www.COTAforCamilleO.com.
Fundraising efforts are under way to help meet medical expenses for young Camille Osborn, of Woodville, who needs a lifesaving kidney and liver transplant.